Matthew had his doctors appointment yesterday. His inflammation numbers have dropped in half again. At this rate he should have his numbers within or almost within normal range by our next blood test in a couple weeks. The reality of how long this process is going to take for Matthew to be off the Prednisone was realized yesterday at the doctor appt. I asked the Dr. what the process would be like once we start the weening. I knew we had to go down in the dose gradually. I didn't realize how slow that process would be though. He will probably go off the drug in about 6 different increments. Each increment would be about 2-3 weeks and we probably will not start the weening process until after the first of the year. That puts him not getting done with this until almost the end of the school year!! Alot longer than I had anticipated. However, I am so thankful that Matthew is able to function pretty normal now. So we take the good with the bad.
Matthew is dealing with soreness from jumping on a trampoline while my little sister was watching him. It was an emergency that I had her watch him and I didn't give instructions for her to limit those kind of activities. Oh well, the doctor said having fun is therapeutic for him too :).
So that emergency that I just talked about was that I had to take, Trevor, our oldest son to the Emergency Room on Tuesday. Monday evening at football practice Trevor went head to head with someone in a tackle and hurt his neck. Monday night and Tuesday he could not lift his head up straight and was in a lot of pain. I took him to our Chiropractor on Tuesday and they took x-rays. They sent us to the ER because his neck is curved the wrong way and they were concerned about a dislocation.
At the ER they did a CT scan and the test was good. There are no fractures, but they still found that the curve of his neck is wrong. We are suppose to get in and see an Orthopedic specialist. I have been trying to get an appointment for 2 days now with no luck. It is getting very frustrating so I know I am learning patience AGAIN.
At this point Trevor is not going to school, obviously. He is at home and icing his neck for a 1/2 hour every 2 hours. He has a soft neck brace that he wears when not icing. He is now able to hold his neck up straight, though, so we are excited about that. Please pray that we get him into the Orthopedic doctor soon.
In a way this is kind of humorous. I know the doctor that we saw in the ER because this is our third time we have been there in the past couple years. Granted we happened to get the same doctor each time. Anyway it made me kind of laugh when she walked in the room.
So thank you all again for your prayers. It is not what things happen to you in life that are important, but how we react to those things. My prayer is that whatever comes our way that we would respond in a Christ honoring way. How blessed we are even in the midst of hard times!!
Thursday, November 20, 2008
Monday, November 10, 2008
Still on Prednisone
Matthew's last blood tests came back better!! His inflammation is not within normal range yet so he continues to take the Prednisone for a little longer. The goal is to ween him off of it as soon as his inflammation levels are in normal range. Hopefully that will be soon. He will have blood drawn again this week. Last time I expected to hear from his doctor as soon as the results were back, but I guess since we were going to see her soon for an appointment she just waited. I am sure that will happen again this time. So I don't expect to know much until we have our appointment with her on November 19th.
Matthew has good energy now. He is still achy at times from using his muscles for normal stuff. He will just have to work those back up. The color in his face has gotten much better too. He looked so sickly for so long. Now his complexion is rosier and he doesn't have such dark circles under his eyes. He is looking good. He also gained three pounds back the last time we were at the doctor.
Exciting news for Matthew is that he went to school 3 days last week. The first time he has gone since the beginning of September. The plan is for him to go a couple days again this week. He is doing so well keeping up with his school work here at home. I think there will be a little catch up he will need to do, but overall he will do great going back into the class full time soon. We just need to take things slow. One step at a time and see how he does. He thinks he can do more than he can. I have to be the mean mom sometimes and tell him to slow down or that he can't do different things, because I know he will hurt for it later.
Thank you everyone who has been following this blog and praying for Matthew. I hope that one day soon I will write the final blog telling you that our little guy is finally all better. I think we are getting close. The real test will be to see how he does once he is all the way off the medication. Please continue to pray for him. We are so thankful for your prayers!!
Matthew has good energy now. He is still achy at times from using his muscles for normal stuff. He will just have to work those back up. The color in his face has gotten much better too. He looked so sickly for so long. Now his complexion is rosier and he doesn't have such dark circles under his eyes. He is looking good. He also gained three pounds back the last time we were at the doctor.
Exciting news for Matthew is that he went to school 3 days last week. The first time he has gone since the beginning of September. The plan is for him to go a couple days again this week. He is doing so well keeping up with his school work here at home. I think there will be a little catch up he will need to do, but overall he will do great going back into the class full time soon. We just need to take things slow. One step at a time and see how he does. He thinks he can do more than he can. I have to be the mean mom sometimes and tell him to slow down or that he can't do different things, because I know he will hurt for it later.
Thank you everyone who has been following this blog and praying for Matthew. I hope that one day soon I will write the final blog telling you that our little guy is finally all better. I think we are getting close. The real test will be to see how he does once he is all the way off the medication. Please continue to pray for him. We are so thankful for your prayers!!
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