Yes we are still here :)

Well over two months later I am finally making another post. We made it through the busyness of the holidays and all the fun that comes with it. Our last post talked of Trevor and his neck injury. He is doing very well with Chiropractic treatment. He did not end up seeing an Orthopedic doctor and everything is going well with that although it was scary at the time.

Right after Thanksgiving Matthew developed a rash on his hands, but felt fine. We talked to the doctor and were told to just watch him. We did and he continued to do well. The rash was gone in a couple days, but then he got a bad cold the next Saturday. Normal cold symptoms. Gross coughing, runny nose etc. It took about three weeks for his cough to go all the way away, but the runny nose continued a bit. All this to say I wasn't surprise as we got his blood work done as we usually do every three weeks, that his numbers were getting worse. His numbers had been getting consistently better until the cold. That is OK though the cold was getting better so would the numbers...I thought.

Three weeks ago Matthew got another "something." Cold or flu I'm not sure. He and I were both sick the same day and felt pretty awful. No big deal this is the season for it and the Prednisone weakens Matthew's immune system. We know this. He will get over this virus too just like the one a couple months ago. Well the next day started our current situation. Matthew started to be really, really sore again on his neck, head and shoulders. So much that he can't move his neck very much again. It is reminiscent of July when they thought he had meningitis. The difference is that He doesn't have a fever every time he is sore(sometimes he does) and he is not sore every day. Also some of the time that he is sore he is really sore on his feet and ankles.

He is sore right now about every couple days. One day he will be running around acting like all the other kids and you would never know he is sick. The very next day he could be so sore that he can hardly walk. He can't hardly turn his head and his soreness in his neck area hurts so bad that he hurts to swallow food sometimes. I have gone back to having to help feed him some days while he lays in his chair. It can take him 5 minutes to get down the hall to the bathroom(it isn't that far).

So the solution now? We don't know. The Prednisone was our last resort for this unknown illness. The next thing we are trying is an MRI. The doctor ordered an MRI of his neck, cervical spine, and ankles and feet. Since this is 3 MRIs in one we have to schedule a three hour time block and the next available time is February 18. He will have to be totally put under anesthesia during the MRI. I am glad this is being done and feel that it probably should have been done this last summer when he was in the hospital. Our prayer is that nothing would be there of course, but IF there is something to be found that it would be revealed in the MRI. That we might get some light shed on this mystery and figure out how to help our little guy get better. Please pray with us that we would get some answers and for Matthew to not be in so much pain.

In the mean time Matthew continues to go to school on his good days. I am so thankful that he has half day Kindergarten even for his good days. I have gotten set up to work form home now. We kept on thinking that we would get to a point where I could go in to work on some days, but we are seeing that I need to not have commitments where I have to be there on specific days. Instead I am doing more administrative stuff each day from home logging into the computers at the gym and making phone calls from home. I am thankful for this mental distraction each day as my mind can wander to the unknowns of this new situation with Matthew.

I don't even know if anyone checks this blog anymore. If you are reading this thank you for your interest in our family and for your prayers. We so appreciate them. We keep being hopeful that we will one day write a post that Matthew is all better.

Christina for the Jorg Family